Category / mental health

by Erin Nowicki

Ouch! It’s Been A Long Time…

Can you believe I haven’t posted on here since 2020…I literally think about this blog every week so I didn’t realized that it had been quite that long. 🤭 My life has changed a lot since 2020, except for the fact that I still live with SPD, so I thought I would update you a bit and share some thoughts I have on the future of this blog.

Farewell Chi-Town!

After 7 years of living up north in Chicago, Illinois, Jon, Macaroni and I decided to move to Florida, to start a new adventure. We really enjoyed living in Chicago, made life-changing relationships, and made amazing memories that will always live in our hearts. There were many factors in our decision to move, but the main reason was because of our mental health. The winters in Chi-town can be grueling and each year we could see that our mental health was getting worse and worse during those dark, cold months. With the pandemic and other major life changes on top of those long winters, it was only right for us to go somewhere new and sunny to continue our journey in this life.

Why Florida?

Jon grew up in Florida, so we initially thought we’d land in Orlando, especially since his parents and a lot of friends are there. A month and a half after living with his folks and both of us not finding jobs we wanted, Jon got a job offer as a golf instructor for a company called GOLFTEC down in St. Petersburg, Florida. The day before Thanksgiving, with the help of Jon’s parents, we loaded up a U-Haul and drove to our new apartment. That same day, I had an interview with an amazing family for a nanny position, which I accepted and have been with ever since.

The west coast has always called our names and we really wanted to try and move out that way, but the timing wasn’t right. St. Pete, also known as “Sunshine City,” has really captured both of our hearts. We live 10-15 minutes from the most beautiful beaches and 10 minutes from a really fun downtown. There are tons of outdoorsy things for us to do and it’s been a great city to live in. It has a California vibe but on a smaller level, which for right now is totally great for us.

The Blog

In the past, when I was trying to collect info and write blog posts, I kept noticing that my sensory would always be heightened..so… I just stopped writing all together. Honestly, I put so much pressure on myself to get posts out that my body would shut down. Then I’d put so much guilt on my shoulders because I was “failing” at this blog or letting the world down.

The whole purpose of this blog was to share a glimpse into my life as a person living with Sensory Processing Disorder, possibly to help others with their own SPD journey, and to help bring an awareness to people who aren’t familiar with this disorder. If that was the goal, which it 100% still is, then there doesn’t need to be any room in my brain for guilt or fear. So, as of April 23, 2023, I give myself permission to write when I want, to be guilt free, and to let the pressure dissipate. Done and done.

All of that to say: I will still be writing blog posts, but I’m not going to put any pressure on myself or body to do it with a deadline. I’m going to be “free-blogging” a.k.a. writing when I feel inspired to. When I’ve done something like this with other things in my life, I have felt more fulfilled, so it’s only natural for that to be the case this time around. As a reader, I know that you want someone who’s writing with passion, a purpose and true authenticity, not someone who’s writing to just write. So, that’s what you’re gonna get!

Your Turn

I don’t want this blog to be all about me. There is a world out there filled with others just like me…I want to hear from you! Family’s or friend’s of people with SPD, I want to hear from you! If you have any questions or are interested in wanting to know something specific, I want to hear from you!

What do you want me to write about? As a reader, what are you wanting to read? Drop a comment on this post or if you want to keep your thoughts/questions anonymous, fill out the form on my contact page.

Over and Out

Thank you for choosing to use your time to catch up with me. I hope this post finds you pursuing a healthy, whole life, because you deserve that and SO much more. Stay magical. 🦄

by Erin Nowicki

The Pea

 “In the morning she was asked how she had slept. “Oh, very badly!” said she. “I have scarcely closed my eyes all night. Heaven only knows what was in the bed, but I was lying on something hard, so that I am black and blue all over my body. It’s horrible!” Now they knew that she was a real princess because she had felt the pea right through the twenty mattresses and the twenty eider-down beds. Nobody but a real princess could be as sensitive as that.“

Excerpt from The Princess and The Pea written by Hans Christian Anderson

In my first blog post, I talked a little bit about what Sensory Processing Disorder is and that I have been diagnosed with it. For this post, I wanted to answer a few questions that I get asked the most when people find out that I have SPD. Now, I’m not doing this to make you feel sorry for me or make you feel guilty. I honestly want this to be a place for people to be able to relate to, not feel alone, be educated, and to find more understanding. Make sense?

Question 1: Does this hurt? Does that hurt?

It hurts to be touched…by my clothes, the wind, rain, sweat, the list goes ON and ON. Once I tell someone about SPD, I usually get poked and then they ask if it hurts. After I say that it hurt, they respond with shock, “how can that hurt?” They then proceed to gently brush their finger on my arm and they ask if that hurts; and we go on and on until they’ve put me (without thinking) through excruciating pain and are still baffled at the end of their “experiment.”

I don’t always get frustrated when people do that, because I do know that it’s not something you see every day. I would rather people be aware and feel sad that I have pain instead of being in wonder of it and wanting to see the different things that bring me pain.

Question 2: Can I hug you?

This is the question I get the most. It usually comes with a very quick apology once I tell someone I have SPD, because they realize that their act of love was actually hurting me. I know their hug wasn’t meant to bring pain or to be mean..so I don’t really think much of it being a painful experience when I receive a hug. I am still human and desire to be hugged; I will never turn one down even if it is not as comfortable for me in the moment.

There are hugs that feel better to me: bear hugs are my friend. Bear hugs are also described as deep pressure hugs and that’s exactly what someone with SPD wants. If you give me a gentle hug and barely touch me, that actually brings me more pain; I don’t want to be treated like someone with a contagious disease. All that to say, YES you can hug me, just make it bear hug and we are good. 😀

Questions 3: How can you not like showers?!

Now, I get this question as soon as I say that showers are the worst. I HATE showers….I think hate doesn’t even cover my feelings for showers. I can actually go two weeks without one (thanks to dry shampoo, hats, and baby wipes). Don’t freak out on me…I don’t do that all the time, but if my SPD is bad, I will definitely skip a shower.

For the longest time, I was so ashamed of this because I would usually get made fun of, shamed for being a “disgusting” person, laughed at, & judged. People tend to think that if someone does something that’s against “social norms” that it’s ok to immediately judge them instead of asking the WHY question and putting forth effort to try to understand. Obviously, I’m not quite as ashamed of it as much anymore since I’m writing about this for the world to see, but it sure is taking a lot of courage. And even if this fact about me disgusts you, that is totally ok, BUT, hear me out so maybe you can at least understand where I’m coming from…

So, why do I hate showers so much and why do I hardly take them? I tend to ask this question back: Would you bathe yourself with thousands of needles every day just so you can be socially acceptable? I promise you that I’m not saying this with a sassafras attitude. I’m legitimately asking you this question, because that is my answer to why I hate showers and I dread them each time I have to take one. Showers hurt like fire and it takes all of my mental and physical strength to get in one.

Questions 4: “Why are you being so emotional?”

Physical feelings aren’t the only feelings that are affected by SPD. My emotional feelings are heightened as well. I get upset really easily when it comes to certain things-like commercials, movies with death, when I get angry, volume being too loud, etc… Now, over the years, I’ve been able to adjust my feelings a decent amount, but this still is a work in progress. I’m thankful for my anti-depressants as well, because they’ve helped balance and control my emotions a little better.

Since my brain is being told that something is worse than what is actually happening, I tend to get upset without being able to control it and sometimes not even realize why I’m even upset. Now over the years, I’ve become more aware of this and have actively tried to control these overwhelming feelings.

I have also been diagnosed with Depression and Anxiety and I will definitely talk about those at some point. I believe my SPD enhances both the depression and anxiety, which is why I can be even more sensitive about certain things.

Question 5: Does that mean sex hurts you?

For me, the hardest thing about this disorder is being married to someone who’s love language is physical touch and desires physical touch daily. Sometimes I find it funny that God brought me someone who has the complete opposite love language as me. What the heck, God! 😉

Like I said about the hugs, I am a human and desire to be hugged…so yes, sometimes I do desire to be intimate with my husband. The annoying part of the situation is that sex is absolutely painful in every way for me and it’s not something that I “crave.” I have to really be intentional about reminding myself that Jon needs physical touch and intimacy more than I do.

I don’t want to give SPD all the credit for the pain; there are other factors that have increased my pain level when it comes to sex. I have some posts coming up where I will talk more in detail about sex and traumas that I’ve experienced.

If you have any questions about me, SPD or any of the content I have posted, please leave a comment below, drop direct message on my Contact page, or shoot me an email. No question is bad or awkward, so please feel free to ask WHATEVER. I will either respond directly or I will write a post that corresponds with your question.

by Erin Nowicki

The Princess

Hi there, my name is Erin and I am a 30-year old, blue haired, unicorn-believin’ girl and the princess in this tale (aka my blog).

I was born in Würzburg, Germany, to the most incredible parents. My dad was in the Army my entire life, hence why I wasn’t born stateside. While growing up, we lived in Germany twice, Georgia and Tennessee. I have 2 birth sisters and 5 adopted siblings (3 girls, 2 boys).

In 2007, I moved to Memphis, TN, to go to a music college and that is where I met my hunky husband, Jon. After we graduated in 2010, with Bachelor’s Degrees in Music Ministry, we got married that following Fall. About 2 years after that, we moved to Belgium to be full-time missionaries. It was the most life-changing time of our married life. We got to travel, gain lifetime friends, train musicians, and just be adventurers. Unfortunately, we were only there for 15 months because we ran out of money (for the record…MONEY SUCKS). Those 15 months flew by, but we will never forget our time there and we still miss Belgium and the people there every single day.

Jon and I then moved to Illinois, which is where we are now. We live right outside the city of Chicago with our adorable pup, Macaroni. Currently, I am a full time nanny and I absolutely love my job. I chose to be a nanny because I love being around kids- they help keep my imagination young and keep my creativity flowing.

Speaking of creativity; MUSIC is what I am most passionate about in the entire world. I am a singer and a songwriter as well as a worship leader. I have a band called, Hello Wonder, and it is a dream come true. The ultimate dream is to do that full time, but for now, I’m thankful for what I have and that goal I’m working toward.

Alright, that’s it for now. This is your last chance to turn back from reading this blog. 😉 The posts from now on will be diving into more vulnerable, uncomfortable (but necessary), subjects pertaining to my Sensory Processing Disorder, mental health, sex, and some other things. I ask you to open your mind and leave judgment outside. I also invite you to come along with me to learn and to be enlightened. BUT—only come along on your own terms. You know what you can and can’t handle-so be free.

by Erin Nowicki

Fairytale or Not?

You probably know the story about the princess and the pea, but I bet you didn’t know that it is the most relatable fairytale for someone with Sensory Processing Disorder. Before I go any further, I want to establish exactly what SPD is, especially for those of you don’t know what it is. 

STAR Institute defines SPD like this: 

Sensory processing (originally called “sensory integration dysfunction” or SID) refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses.

To simplify this definition:

The “telephone wire” between your nerves and brain is disconnected somehow, which means, that your brain is being told that, for example, putting on clothes is painful- even though you know that it shouldn’t hurt. 

So…back to our fairytale. I remember reading the part of the story where the princess comes to the breakfast table and is absolutely exhausted because there was a small bump (aka the little green pea) that was bothering her all night. I remember TOTALLY relating to her and knowing exactly how she feels. The thing that people find funny and unbelievable is that is has to be “impossible” for a pea to cause pain. That is where they are wrong…this fairytale is not just about my life, but many many other people’s lives who live with Sensory Processing Disorder.

I wasn’t diagnosed with SPD until I was a Sophomore in high school. For many, many years, I got made fun of by “brilliant” doctors who didn’t believe me when I said that I hurt every time I touched something or something touched me. They would always laugh in my face and say that I was crazy and that I was being a drama queen. 

I will never forget the day that my mom and I were told that we weren’t crazy. We both looked at each other and just started sobbing. To have that knowledge that I wasn’t crazy and that I wasn’t making it up made me feel liberated. The doctor who diagnosed me was an occupational therapist who specialized in SPD in Autistic children. See, almost every person with Autism has SPD, but what most people don’t know is that there are tons of people without Autism that have severe cases of SPD (like me) as well.

The thing is, as an adult, there aren’t any reading materials that focus on being an adult with SPD. Most of the material focuses on kids with Autism that have SPD. Also, the support groups I’ve found on social media for adults with SPD, don’t really help either-or really I just haven’t had any success with feeling supported on those platforms. All that to say, I really want this blog to be a place where you can come to for advice, stories about my life while living with SPD, coping mechanisms, inspiration, knowledge, support, etc…

Now, I am a dreamer and have many dreams, but one of my ultimate dreams is to partner with an occupational therapist who specializes in SPD and write a book that is geared for adults living with SPD (whether or not they’ve been diagnosed with it). Maybe that will happen one day, but for now I will start with this blog.

**Disclaimer**

I will be excruciatingly honest about certain aspects of living with SPD and I will not hold any details back no matter how personal they are. Life can be REALLY tough when living with SPD, but if someone doesn’t write about those details, then people aren’t going to be changed for the better- and I don’t want ANYONE to feel the way I felt, because YOU ARE NOT CRAZY!