
You probably know the story about the princess and the pea, but I bet you didn’t know that it is the most relatable fairytale for someone with Sensory Processing Disorder. Before I go any further, I want to establish exactly what SPD is, especially for those of you don’t know what it is.
STAR Institute defines SPD like this:
Sensory processing (originally called “sensory integration dysfunction” or SID) refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses.
To simplify this definition:
The “telephone wire” between your nerves and brain is disconnected somehow, which means, that your brain is being told that, for example, putting on clothes is painful- even though you know that it shouldn’t hurt.
Back to our fairytale:
I remember reading the part of the story where the princess comes to the breakfast table and is absolutely exhausted because there was a small bump (aka the little green pea) that was bothering her all night. I remember TOTALLY relating to her and understanding exactly how she felt. The thing that people find funny and unbelievable is that is has to be “impossible” for a pea to cause pain. That is where they are wrong…this fairytale is not just about my life, but many many other people’s lives who live with Sensory Processing Disorder.
I wasn’t diagnosed with SPD until I was a Sophomore in high school. For many years, I got made fun of by “brilliant” doctors who didn’t believe me when I said that I hurt every time I touched something or was touched. They would always laugh in my face and say that I was crazy and that I was being a drama queen.
I will never forget the day that my mom and I were told that we weren’t crazy. We both looked at each other and just started sobbing. To have that knowledge that I wasn’t crazy and that I wasn’t making it up helped me to feel liberated. The doctor who diagnosed me was an occupational therapist who specialized in SPD in Autistic children. See, most people with Autism have SPD, but what a lot of people don’t know is that there are tons of people without Autism that have severe cases of SPD (like me) as well.
The thing is, as an adult, it is hard to find resources that focus on being an adult with SPD. Most of the material focuses on kids with Autism that have SPD. Also, the support groups I’ve found on social media for adults with SPD, don’t really help either-or really I just haven’t had any success with feeling supported on those platforms. All that to say, I really want this blog to be a place where you can come to for advice, stories about my life while living with SPD, coping mechanisms, inspiration, knowledge, support, etc…
Thank you for joining me on my journey and being willing to see the world from my point of you. ❤️
𝕤𝕥𝕒𝕪 𝕞𝕒𝕘𝕚𝕔𝕒𝕝
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