You probably know the story about the princess and the pea, but I bet you didn’t know that it is the most relatable fairytale for someone with Sensory Processing Disorder. Before I go any further, I want to establish exactly what SPD is, especially for those of you don’t know what it is.
STAR Institute defines SPD like this:
Sensory processing (originally called “sensory integration dysfunction” or SID) refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses.
To simplify this definition:
The “telephone wire” between your nerves and brain is disconnected somehow, which means, that your brain is being told that, for example, putting on clothes is painful- even though you know that it shouldn’t hurt.
So…back to our fairytale. I remember reading the part of the story where the princess comes to the breakfast table and is absolutely exhausted because there was a small bump (aka the little green pea) that was bothering her all night. I remember TOTALLY relating to her and knowing exactly how she feels. The thing that people find funny and unbelievable is that is has to be “impossible” for a pea to cause pain. That is where they are wrong…this fairytale is not just about my life, but many many other people’s lives who live with Sensory Processing Disorder.
I wasn’t diagnosed with SPD until I was a Sophomore in high school. For many, many years, I got made fun of by “brilliant” doctors who didn’t believe me when I said that I hurt every time I touched something or something touched me. They would always laugh in my face and say that I was crazy and that I was being a drama queen.
I will never forget the day that my mom and I were told that we weren’t crazy. We both looked at each other and just started sobbing. To have that knowledge that I wasn’t crazy and that I wasn’t making it up made me feel liberated. The doctor who diagnosed me was an occupational therapist who specialized in SPD in Autistic children. See, almost every person with Autism has SPD, but what most people don’t know is that there are tons of people without Autism that have severe cases of SPD (like me) as well.
The thing is, as an adult, there aren’t any reading materials that focus on being an adult with SPD. Most of the material focuses on kids with Autism that have SPD. Also, the support groups I’ve found on social media for adults with SPD, don’t really help either-or really I just haven’t had any success with feeling supported on those platforms. All that to say, I really want this blog to be a place where you can come to for advice, stories about my life while living with SPD, coping mechanisms, inspiration, knowledge, support, etc…
Now, I am a dreamer and have many dreams, but one of my ultimate dreams is to partner with an occupational therapist who specializes in SPD and write a book that is geared for adults living with SPD (whether or not they’ve been diagnosed with it). Maybe that will happen one day, but for now I will start with this blog.
**Disclaimer**
I will be excruciatingly honest about certain aspects of living with SPD and I will not hold any details back no matter how personal they are. Life can be REALLY tough when living with SPD, but if someone doesn’t write about those details, then people aren’t going to be changed for the better- and I don’t want ANYONE to feel the way I felt, because YOU ARE NOT CRAZY!

This is awesome and I’m so proud of you for doing it!!! 💗
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Aw thanks Lili! 😘
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Erin, I will read your blog with great interest and love, having known you since you were a tiny thing!
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Thank you!
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You are such a gift! Thanks for being brave and real. ❤️
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Aw thanks so much Julie!
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Thank you for continuing to be awesome and to share your story. You’re amazing & brave! ❤️
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So proud of you my girl!!! I still cry whenever I talk about the day that Lana explained what was going on inside your body and it made PERFECT sense! Love you my courageous dreaming daughter!!!
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Love you mom!
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I was thinking that you should write a book, then you said you wanted to. You are a brave strong woman. God will help you with this new journey.
Terri
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Thanks Terri! I appreciate you!
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I was just diagnosed at age 53. I knew about SI and I recognized myself but thought I was the Lone Adult Weirdo with SI. I’ve always described myself as the princess and the pea, but my pea has always felt like a boulder. I’m not weird or fussy. I’m discerning and unique. You are too. Glad you’re doing this.
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Oh my goodness thank you for sharing this! I’m glad you acknowledge that you are special!! And thank you for encouraging me! ❤
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whoah this blog is excellent i love reading your posts. Keep up the great work! You know, many people are searching around for this info, you could help them greatly.
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